General Discussion Triathlon Talk » Chronic Lyme Disease Rss Feed  
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2009-02-25 2:32 PM

Member
24

Seattle, Ballard neighborhood
Subject: Chronic Lyme Disease
I was recently diagnosed with Late Stage, Chronic Lyme. From my calculations, I think I've had it for about 20 years and just found out what it was. I did my first Tri last year and loved it. I'm in pain all the time, but just kind of suck it up. Lately I've been in more pain, had more migraines, and my sense of well-being has greatly gone down hill to the point it's hard for me to interact with a lot of people, and I'm a school secretary so that's been challenging.

I should start my intensive antibiotic treatment in a couple of months. The Tri I want to do is July 19th, and I'm not sure if this is feasible. I will also ask my doctor what she thinks, but I'd love to know if anyone else is in a similar boat.

I'd love to hear from anyone who may have Lyme or Chronic Pain and still plugs through the pain to do Tri's.

Thanks,
Sarah


2009-02-25 6:30 PM
in reply to: #1981686

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Subject: RE: Chronic Lyme Disease

I am so sorry  you have had this so long and just now found out ! I do not have this, but I wanted to say how impressed that even with this you have "sucked it up" !!!!

2009-02-25 8:37 PM
in reply to: #1981686

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Subject: RE: Chronic Lyme Disease
say78 - 2009-02-25 2:32 PM



I'd love to hear from anyone who may have Lyme or Chronic Pain and still plugs through the pain to do Tri's.

Thanks,
Sarah


I don't have Lyme, but DO deal with chronic pain...so yes, I understand how challenging it can be to keep to a training schedule. Last year was my first stab at triathlons, and I too, loved it. I had high hopes of doing at least 3 races (sprint, HIM, OLY in that order) this year, one of which I already registered and paid for...but may have to scrap my race schedule altogether due to the pain that running causes me. Anyways...I'm sorry about your Lyme diagnosis. Feel free to PM if you care to share any thoughts.

Linda
2009-02-26 10:46 AM
in reply to: #1981686


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Subject: RE: Chronic Lyme Disease
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I think that your attitude is extremely positive and you should continue to think in this way. (remember this in the upcoming months of your treatment!)

I was a Triathlete prior to being diagnosed with Lyme Disease 8 months ago. I've been fighting it sense and am continuing to fight it. I have some questions for you if you’re willing to answer. Why aren't you being started on IV Antibiotics now? Why are they waiting two more months? Have you researched what you’re up against to fully understand what to expect?

When I was first diagnosed I went to my doctor because I was so tired all the time. I thought that maybe I had over trained. From that moment on as I am being treated and my symptoms have gotten worse (this is very normal) and rest has been very needed. If it gets to this point for you with your treatment, listen to your body and rest. Once your better you can get back to training 100%, but sometimes we have to lay low to get to that point!!

Everyone is different (yet the same) with this disease. I've been researching a great deal in the last couple of weeks on how to start training again given my current condition. (fatigue, knee pain, back pain, ankle pain and migraines) I have a couple links that I have found so far which has started to help me develop my training:

http://fightinglymedisease.blogspot.com/

If you go to this website, on the right side is a bunch on links that I am collecting for research on Lyme Disease (under Lyme Disease Research). One is running and Lyme and you might find this helpful. There really isn't a lot of information out there for athletes like us who are fighting or healing from Lyme Disease. I feel that the best thing that we can do is reach out to others and help each other get back up!!

You got diagnosed finally! This is very good thing which means that with the right steps you can get better again and have your real life back. Once your through this hurtle and the pain is gone, can you imagine the possibilities you have as an athlete?

I hope that I was able to help! We're both looking for the same thing.

Ambor

2009-02-26 11:04 AM
in reply to: #1981686

Member
24

Seattle, Ballard neighborhood
Subject: RE: Chronic Lyme Disease
Thank you all for your posts and "support"!

Ambor here's the answer to your questions...

I've done two IV's but they are mostly a high dose of vitamins mostly Magnesium and I think there's lidacain for back pain. They want me to try and do that once a week. The reason why they want me to wait on the treatment is because I have a lot of other issues going on such as thyroid and hormone malfunctions. I'm taking a TON of supplements and things to try and get some parts working better so my body can handle the intense antibiotic treatment. I was unofficially diagnosed with Lyme in October through a Mainstream doctor. I was on Doxycycline for one month and then he didn't know what to do with me since I wasn't better, so he referred me to a specialist. I had another test done through Igenix which confirmed I have Chronic Lyme. But since October, I've been researching a lot, but tend to find a lot of different info. I've also joined a support group which seems to be helpful. It's great to know more people with this illness. If you have a facebook account, I'd like to add anyone with Lyme to my "friends" list. Feel free to PM me with your e-mail if this is the case.

Thanks again for your input!
Sarah


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