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2010-04-13 8:21 AM
in reply to: #2785751

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Subject: RE: I need all the prayers a I can get!
Thoughts and prayers to you and yours


2010-04-13 10:58 AM
in reply to: #2785751

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Subject: RE: I need all the prayers a I can get!
I pray. I will say a prayer for him.
2010-04-13 2:50 PM
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Subject: RE: I need all the prayers a I can get!
best wishes... hope he is okay


Edited by yorkee 2010-04-13 2:51 PM
2010-04-13 8:57 PM
in reply to: #2785751

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Subject: RE: I need all the prayers a I can get!
Jason,

My secretary's daughter has SMA.  I'm going to PM you my cell number.  If you want to talk to someone who has been, and is still going through what you may be, please give me a call and I'll put you in touch with her.

To the rest of the Michigan BTers, there is a 5K to find a cure for SMA on May 1 at Hawk Island (Lansing).  I've done the race the past few years and it's very family friendly for those with kids (clown face painting, balloon animals, etc.).  Please join me and lets find a cure for Ben!  I'll start another thread with more details about the race.
2010-04-13 9:04 PM
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Subject: RE: I need all the prayers a I can get!
jason, nothing but love for you, TJ, and ben. 

My ped neurologists turned out to be duds...if my ex doesn't have the warm and fuzzies, I don't either. So we're on plan b.

I'll call the dude who runs beaumont tomorrow. Name forthcoming.
2010-04-14 6:14 AM
in reply to: #2785751

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Troy, MI
Subject: RE: I need all the prayers a I can get!

pm sent with names of pediatric neurologists that work out of either Beaumont Children's Hospital or Children's Hospital of Michigan.  I currently work at Beaumont but have worked at CHM in the past.  Sending lots of prayers your way. 



2010-04-14 6:23 AM
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Master
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Subject: RE: I need all the prayers a I can get!
Saw your FB page, thinking of you and TJ and more importantly Ben, sending good thoughts & prayers  your way
Andrea
2010-04-14 3:47 PM
in reply to: #2790266

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Subject: RE: I need all the prayers a I can get!
jogo - 2010-04-14 7:14 AM

pm sent with names of pediatric neurologists that work out of either Beaumont Children's Hospital or Children's Hospital of Michigan.  I currently work at Beaumont but have worked at CHM in the past.  Sending lots of prayers your way. 




Thank you for the recommendations. We are going to see a doctor @ UM on Friday and Wednesday we see the doctor @ Detroit that is on the SMA list. SMA is at the top of the list but they are looking at other things. Please pray it is something else.
2010-04-14 4:30 PM
in reply to: #2792281

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Subject: RE: I need all the prayers a I can get!

jgrindle16 - 2010-04-14 4:47 PM
jogo - 2010-04-14 7:14 AM

pm sent with names of pediatric neurologists that work out of either Beaumont Children's Hospital or Children's Hospital of Michigan.  I currently work at Beaumont but have worked at CHM in the past.  Sending lots of prayers your way. 

Thank you for the recommendations. We are going to see a doctor @ UM on Friday and Wednesday we see the doctor @ Detroit that is on the SMA list. SMA is at the top of the list but they are looking at other things. Please pray it is something else.

Praying, praying, praying...

2010-04-16 2:08 PM
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Subject: RE: I need all the prayers a I can get!
Keep it coming folks, keep it coming.
2010-04-17 8:19 PM
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Subject: RE: I need all the prayers a I can get!
My prayers are with your little man and your family.  I will send some major mojo your way too.


2010-04-17 10:19 PM
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Subject: RE: I need all the prayers a I can get!

So sorry to see this, praying for you guys.

2010-04-19 9:36 AM
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Subject: RE: I need all the prayers a I can get!

I'm sorry your going through this.  You, TJ, and Ben are in my thoughts and prayers.

2010-04-23 6:53 PM
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Subject: RE: I need all the prayers a I can get!
I wanted to let everyone know we heard from the doctor today and the result came back positive for SMA type 1. We appreciate all the prayers everyone has sent us throught this process. I ask you for your prayers to help us get through this journey we are going to start. Thank you all again from the bottom of my heart.
2010-04-23 6:55 PM
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Subject: RE: I need all the prayers a I can get!
Brickey - 2010-04-13 9:57 PM

Jason,

My secretary's daughter has SMA.  I'm going to PM you my cell number.  If you want to talk to someone who has been, and is still going through what you may be, please give me a call and I'll put you in touch with her.

To the rest of the Michigan BTers, there is a 5K to find a cure for SMA on May 1 at Hawk Island (Lansing).  I've done the race the past few years and it's very family friendly for those with kids (clown face painting, balloon animals, etc.).  Please join me and lets find a cure for Ben!  I'll start another thread with more details about the race.



Dave,

I am planning to be at the race. Are you going to be there? I think the whole family is coming.
2010-04-28 9:45 AM
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Master
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Subject: RE: I need all the prayers a I can get!
Keep it going folks.  Ben and family need us. 


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