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2017-07-07 4:40 PM

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Subject: Hyponatremia & dehydration
Hello all,

Hoping someone might be able to chime in.

I've been struggling performance wise since 2011. I've had multiple tests since July 2012. Negative for Celiac, Crohn's and Small Intestinal Bacterial Overgrowth. Two allergy tests were positive for gluten, soy and some nuts and seeds. I eliminated those foods, found no relief, so, added them back. I've tried many of the usual supplements for GI issues, but received no benefit. Had candida overgrowth from Feb 2017 labs. One GI doc in July 2012 concluded IBS. My intuition tells me it's not the food, and, IBS is just a symptom. Seeing my 13th specialist who also believes IBS is just a symptom. Currently, my chief symptoms are chronic fatigue (no matter how much I sleep), bloated pot belly, stubborn weight gain that diet and exercise will not affect, overall thicker body composition, change in urine and bowel habits, blurry vision, chronic muscle soreness, and gut swelling like a pregnant woman when I drink water, eat and exercise.

Some history:

In Sept 2010, I finished Branson 70.3. I was in the best shape of my life at that time. During the run, my "wheels" fell off. That year, the temps were in the upper 90s. During the run, I got nauseous, bloated belly, water was sloshing around in my gut, felt sore all over and lost my appetite. I went to the medical tent after the race. The EMT gave me an IV of two bags of a saline solution (I assume sodium chloride). My blood pressure was about 60 over 40. EMT said I had diluted sodium levels (hyponatremia). It made sense because I didn't take enough electrolytes, but just kept drinking only water. Had some electrolytes on the run, but, the EMT concluded it was too late. I needed the IV because my digestion was compromised. Within an hour of the IV, I felt reborn. All my previous symptoms disappeared. I wasn't even sore. My appetite returned, so, got something to eat. The next morning, I felt great, so, did an hour easy bike ride. Returned to WA a few days later still feeling great.

Fast forward to March 2011. I began to feel something off in my gut. Physical exercise was harder. By October 2011, something was definitely not right in my gut. My weight had gradually increased by 15 pounds since Branson (I've been between 150-155 from 95-2010). Overall body composition was puffier. I noticed no matter what exercises I did and what I ate (been vegan since 95), my body was not leaning out like before. By 2012, my urine and bowel habits changed.

As of today, my symptoms have worsened. One thing I've noticed is when I drink water (up to a gallon a day, with some electrolytes), I don't have to urinate for two hours. When I do go, it's not clear and the volume is low. When I was well from 95-2010, I would drink a quart of water, and have to urinate really bad within 30 minutes. When I'd go, it was mostly clear (unless taking a multi-vitamin) and heavy volume. When I drink water now, it feels like it's sitting in my stomach, but finally evacuates after several hours. It also causes my belly to inflate like a woman four to six months pregnant. My body weight is also heavier. It's now 25 pounds more since 2010. There's also a fat roll around the belly that's impossible to lose. Physical exercise (like SBR) makes my belly bloat more so.

Currently, I'm drinking between 170-190oz of water (with electrolytes) each day. My urine becomes clear and heavy volume only after consuming 90 oz of water. I drink that before I eat breakfast. However, I still have the chief symptoms I cited above in the first paragraph. I thought I've been chronically dehydrated since 2011, but, my symptoms are not improving after increasing my water and electrolyte intake.

I had a specialist draw blood last week (waiting for results) He's checking for lyme among other things.

Hoping someone might have experienced similar issues and found the root cause. Thanks for your input.

Edited by Recoverie 2017-07-07 4:50 PM


2017-07-07 4:53 PM
in reply to: Recoverie

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Subject: RE: Hyponatremia & dehydration
I think a doctor would be more qualified to address most of these concerns than someone on this forum. But it seems to me that you are really taking in a lot of water/fluids. I do most of my training in tropical conditions and unless I am converting wrong from ounces to ml, that is quite a bit more than I would take in even on a heavy training day in pretty extreme conditions (for example, a three-hour plus ride and half-hour run with heat index pushing triple digits. I am smaller than you (115-120 pounds) but have a pretty high sweat rate. My body just couldn't process the amounts of fluids you're taking in, with or without adding electrolytes to the water.

Just a guess, but it sounds to me like for some reason your body isn't normally processing the fluids you put into it. I really doubt it's possible to be chronically dehydrated for years and years, especially given the amounts of fluids you are taking in, unless maybe there is some problem with absorbing/utilizing them (kidney issues? diabetes? thyroid?). I assume a doctor would test for that, among other things. Hyponatremia (I've had it a few times) also tends to be an acute issue that is resolved with salt consumption or an IV in an emergency situation.
2017-07-07 5:55 PM
in reply to: Hot Runner

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Subject: RE: Hyponatremia & dehydration
Thanks for your input, HR.

Yes, I agree that a doctor would be more qualified, but, in my experience since 2011, none of the 12 docs I've seen have been able to come up with the root cause. All I hear is "Well, everything looks normal."

Yes, I'm taking in a lot of fluids (along with fresh fruits and veggies). I agree with your analysis about my body is not processing and absorbing them. That's what I feel when I drink the fluids. Things just "sit there." Imo, the increase in body weight may be edema due to retaining most of the fluids I drink. Part of my blood work is being done for those three things you cited. Should hear something next week.

Yeah, I agree chronic dehydration isn't the issue. If I had to guess, my body has "short-circuited" somewhere and isn't processing fluids (and maybe foods) like it used to before Branson. Thanks again for chiming in.

2017-07-07 7:49 PM
in reply to: Recoverie

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Subject: RE: Hyponatremia & dehydration

Why do you feel the need to drink 170-190 oz a day? What happens when you drink half that amount?

I got Lyme and Babesosis when training for tris and it negatively effected my health in many ways. Linger fatigue that nothing would help, some cognitive issues like word recall and a bunch of other odd things. The Elisa Lyme test is about 50% accurate. I had it drawn 4 or 5 times when I went to over 10 specialists like you did and they said it was negative even though I knew I had been bitten by a deer tick. I went to a Lyme specialist who did a battery of tests including MRI of my brain and a spec scan of my flood flow of my brain. She also did the Western Blot Lyme test and I was positive for two tick borne diseases. I was in treatment for over a year, had a picc line in for antibiotics to go through the blood brain barrier, and I improved about 80%. Spirochetes like knees and it ruined my knee so now I need knee replacement.

After being a triathlete from 2004-2011 Lyme and Babesosis took that away from me.

In Maryland if you have a Elisa Lyme test, doctor is required to notify you that it doesn't mean you don't have Lyme. You may want to seek out a Lyme specialist which most do not take insurance. Big controversy over how easy it is to treat Lyme and why some folks have symptoms after the normal 10-21 day treatment many docs give for Lyme. There are two vastly different schools of thought on treatment. If doctors can't agree how are we as patients supposed to know what is the right path. Good Luck!

 

 

2017-07-07 8:14 PM
in reply to: KathyG

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Subject: RE: Hyponatremia & dehydration
Thanks for your input, Kathy. Sorry to hear that disease took triathlons away from you. Are you able to do any sbr?

I feel the need to drink that much because my urine is dark yellow (even w/o a multi-vitamin) and low volume. When I felt great from 95-2010, my urine was mostly clear (unless on a multi) and a heavy volume. The change in urine output and color was one of two dozen symptoms that made me think I was merely dehydrated. So, I drank more water until my urine was clear and heavy. Though I've reached that point since adding more water last Sunday, I still have the other symptoms, like bloating, chronic fatigue and blurry vision. If I drink half that amount, I still feel awful, but, my urine is dark and a low volume.

I'm waiting to hear from the doc what the results are from the blood tests. The reason I asked him to test for Lyme was due to something changing between Sept 2010 and March 2011. I was in AR and MO Sept 2010. I was mowing lawns for relatives in AR before the Branson race. It's possible I got a tick bite. I've learned a person can develop symptoms months later. Just not sure. I lived in that area from 95 to 2004 and had lots of tick bites. My health was excellent. Never developed the symptoms I have now.

2017-07-09 5:50 PM
in reply to: Recoverie

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Subject: RE: Hyponatremia & dehydration

A couple thoughts...

If your doc gave you the ELISA test, it's likely useless in your case.  If it's lyme, you've had it long enough that it's unlikely to generate a positive, because it produces a false negative the majority of the time for chronic lyme.  Because of that, a negative result doesn't answer the question of whether you've got it or not.  Hopefully they used the western blot.  If it comes back for any positive bands, go see a lyme specialist, even if it's less than 5 bands and your doc says you don't have lyme.  Traditionally, that test required 5 bands positive for a diagnosis of lyme, but it's now known by physicians who are current on the disease that because the disease suppresses immune response, chronic lyme patients frequently only produce 2-4 positive bands, so they need to look at clinical symptoms and rule out other potential causes.  If you're in Maryland (I saw Kathy say that, but missed it in your post), I can recommend some lyme specialists in SC PA.  We're ground zero for lyme out of the whole country, so we have a number of docs who know their stuff.

I also question the amount of fluids you're drinking.  That's pretty extreme.  Maybe consider dialing that back a bit.  Also, are you taking any supplements?  There are countless side effects that can result from supplements that people assume are safe because they're natural and not modern medicine.

Lastly, I'd consider finding a gastroenterologist who specializes in the gut microbiome.  There seems to be more learned every day about the effects of a gut microbiome that's out of whack on other parts of the body.

 



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