Ellie's Quest for a Cure 5K

• Date: August 06, 2015
• Address: York St. and 17th Ave., Denver, Colorado Get directions
• Country: United States
• Race type: Run (5k)
• Distances: Run (5.00 kms)
• Organization: The Ellie White Foundation
• Website: http://www.elliewhitefoundation.org
• Contact email: [email protected]
• Description: The Ellie White Foundation for Rare Genetic Disorders is working to find a cure for Wolfram syndrome and other orphan diseases that receive little or no federal or private funding. We fund a research lab at the prestigious medical university -Washington University - they are making great strides towards slowing down and possibly curing this horrific disease. Our fundraising efforts have already funded the first ever fellowships for Wolfram syndrome.
  
  Wolfram Syndrome causes diabetes at a very young age, blindness, hearing loss, and eventually it affects the brain stem, causing respiratory failure at an early age. With no current cure, the life expectancy of a person is typically less than 30 years.
  
  Ellie White is far wiser than her 14 years. She is an inspiration to others and helps raise awareness for her fatal disease. Her dance group, The Silhouettes, came in second on "America's Got Talent" sixth season. She used this public platform to bring awareness to Wolfram syndrome. Even though she's losing her hearing and vision, she loves life and loves to dance.
  
  Race Starts at 7pm
  
  The race will be professionally timed by Racing Underground.
  
  The 5K course is sanctioned and certified.
• Members who are scheduled to race: