Ghoulies Christmas Core Challenge (Page 16)

I do remember Katie being around the last time I had blood tests. I don't remember what she said though. From what I read quick online it looks like it's something that gets diagnosed in men, and older women. How lucky am I to get diagnosed with another old lady disease?I guess it could have played a part in why I diagnosed osteoarthritis in my spine at such an early age.

Sounds like you need to hang around some vampires.  MedlinePlus says the common treatment is to remove some blood. 

Seriously, I hope that you and your doctors can get a handle on this so that you can feel better.

http://www.irondisorders.org/diet/

This talks about nutrition.  What foods help you to absorb iron and which ones impair absorbtion. 

Thanks Kendra. I used to give blood all the time. I haven't given in about a year and a half. Guess it's time to find a blood drive.

Ya. Phlebotomy is pretty much the gold standard rx for hemochromatosis. Not only the heart problems, but might help to explain the arthritis symptoms as well--iron deposits in joint spaces, etc. The liver is the big concern because iron gets deposited there and can end up damaging the tissue in later stage disease.

I think hemochromatosis is also called "bronze diabetes"...because your skin takes on a tanned look and iron can deposit in the pancreas and disrupt insulin and glucagon production...I think...I'm trying to remember what else bronze diabetes could have been...but I am pretty sure it is that.

Yeah, I have arthritis in my lower spine, my neck, both hands and wrists, and I suspect my knees. I did read that alcohol should be avoided or used in moderation, we will see about that.

I refuse to recognize the above toppage because it is sucktastic.

Melissa I've read a few places that say I should avoid raw shellfish. Not only eating it, but touching it at all. Why would that be?

alcohol: probably because of the liver effects more than anything to do with iron

arthritis: hands and fingers is really, really common with HC. I read a case study of a long distance runner who all of a sudden had this debilitating knee pain he though was arthritis. He had the tanning and eventually was dx. with HC. Once he started phlebotomy symtoms got better.

shellfish: only thing I can think of is higher concentration of toxins maybe? again, I would think more to do with the liver than the iron? Not sure though

Well I'm off to run out in the cold. Finishing off a playlist. Be back later.

Remember the faster you run, the faster you get back in the warm!

Ann, it seems to me there's a thread somewhere in the health topics forum on HC. If I remeber correctly, there's several other BT'ers who have it. I'm sorry. That is sucktastic, but at least you know something, and can try different avenues. just think, it's better than being otoally in the dark. At least you have a direction to try first.

For the record Melindy was right. Last January we talked about the hemochromatosis, and Katie did chime in. My doc suspected it then, but I never had the gene mutation study done. She did that this time. I couldn't give blooc back then, but I can now.

I did a search and I didn't find anything. I wonder if I can get a dr.'s note to nap at work now.

I guess having the name Ironanne is REALLY appropriate now.

We knew you were made of some pretty tough stuff!

(all sorts of corny comments come to mind, but I'll stop with the one. ) 

http://www.beginnertriathlete.com/discussion/forums/thread-view.asp?tid=171311&posts=11&mid=2306348&highlight=hemochromatosis&highlightmode=1&action=search#M2306348

tcovert has it. That's the only thread I remember seeing.

Just got back from le run. Cold, dry air + lungs= awesomeness...

Where has everyone been??

Finished swimming and core...need to make food for tomorrow (clinical day)...

My parents are packing and Dad is being super neurotic...*SURPRISE*...He has an entire day tomorrow and night to make sure everything is good to go...lol...

I am doing a happy dance!!!! My hubby is coming home right NOW!!! Yay! he's been in Charlotte since last Monday, and he was originally scheduled to come home earlier tonight, but they were having issues with the plant and getting samples to test, so, yeah. He wasn't going to come home until Thursday. (Thus the funk I was in yesterday. That's when I found out he wouldn't be home as scheduled). He called a couple hours ago to ask if I would pick him up at the airport at 11:50 tonight!!!!! Yay!!! Apparently they someow melted a necessary piece of lab equipment with the bath heater. Aw shucks, huh? 

Hooray!!! I'm goin' to pick up my hubby!!! His flight lands in a half hour. *happy dance* 


Did I mention I'm excited about this???  

Edited by givemashot 2010-12-08 12:13 AM

Good morning Ghoulies!

I had a strange dream last night. I dreamt  that a Ghoulie was very excited and doing a happy dance. It was weird.

Morning Ghoulies.

Funny dream, Ann.

What's going on today, Robin?

I had a staff meeting yesterday. As usual, that means a ton of work today.
That and planning a get together with some friends this weekend.

You, Ironlady?

Edited by ceilidh 2010-12-08 6:36 AM