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2010-04-12 1:04 PM

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Subject: I need all the prayers a I can get!
Please pray for my son Ben. As some of you know he has been diagnosed with hypotonin. It is when he has low or no movement in his limbs. We have been in Hurley's Ped's ICU since Sunday. He has had a CAT scan, spinal tap, blood work, MRI and every other test they can do. I am asking for all your prayers and positive MOJO to be sent his way. I am updating Facebook frequently. Thank you all for your support.


2010-04-12 1:06 PM
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Subject: RE: I need all the prayers a I can get!
Hey Jason, I've been keeping my eye on FB.  You have all the white light I can send right now.
2010-04-12 1:07 PM
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Subject: RE: I need all the prayers a I can get!
Your son and your family will be in our prayers.  I'll look you up on Facebook tonight.

Christopher 
2010-04-12 1:09 PM
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Subject: RE: I need all the prayers a I can get!

I've got you and your family in my thoughts and prayers. 

2010-04-12 1:17 PM
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Subject: RE: I need all the prayers a I can get!

I can't imagine how tough it must be for you....hang in there.  My prayers to your family and to Ben.

2010-04-12 1:17 PM
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Subject: RE: I need all the prayers a I can get!

Best wishes for your little guy, I can't imagine how scary that must be!  I'll try to get added as a facebook friend, too.



2010-04-12 1:26 PM
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Subject: RE: I need all the prayers a I can get!
Sorry, he has been diagnosed with hypotonia.
2010-04-12 1:30 PM
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Subject: RE: I need all the prayers a I can get!

Oh no!  Your family are in my prayers and MAJOPR MOJO being sent your way.  if it is one thing us RAWK Squadders do is send Juju and Mojo very well and en mass. =)

I too will search you out on Facebook to keep an eye out for the situation's progress. 

 

Blessings to you my friend.  ((((hugs))))

2010-04-12 1:35 PM
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Subject: RE: I need all the prayers a I can get!

Steve and I are with you guys in thought and prayers.

2010-04-12 1:41 PM
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Subject: RE: I need all the prayers a I can get!
You've got it.  Our thoughts and prayers are with you and your family.
2010-04-12 1:51 PM
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Subject: RE: I need all the prayers a I can get!

sending thoughts and prayers your way,



2010-04-12 2:19 PM
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Subject: RE: I need all the prayers a I can get!
Thoughts and prayers of strength and healing for you and your family.
2010-04-12 3:05 PM
in reply to: #2785751

Subject: RE: I need all the prayers a I can get!
Our prayers are with yours.  Hurely NICU and PEds are the best around.  I know it's tough, we spent the first 42 days in NICU, but hang in there and hug your wife.
2010-04-12 6:52 PM
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Subject: RE: I need all the prayers a I can get!

Sending prayers and healing vibes for your son.   Please keep us updated.

2010-04-12 7:03 PM
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Subject: RE: I need all the prayers a I can get!
You and your family are in our thoughts and prayers.  Please let us know if there is anything we can do to help you guys out.
2010-04-12 7:09 PM
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Subject: RE: I need all the prayers a I can get!
Thoughts and prayers for your family.


2010-04-12 7:29 PM
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Subject: RE: I need all the prayers a I can get!

This was posted on the "Pray for Ben" Facebook page from TJ recently, figured I'd send it out to those that aren't on Facebook.  Join the group for updates.

 

Our poor baby has been through so much today. There has not been a confirmed diagnosis, but right now the Docs think that Ben has Spinal Muscular Atrophy Type 1. The prognosis is aweful...1 month to 2 years to live. We will not know anything for a few weeks. We are taking him for a second opinion...Please keep your prayers coming!!!! We are desperate and are on our knees praying for our baby. Here are his symptoms-hypotonia (floppy baby), cpk labs elevated (400-when they should be 200), no reflexes, and wiggly tongue. Please ask around and get this information out there...maybe there is something else that can explain what is going on...we are graspng at straws.

2010-04-12 7:34 PM
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Subject: RE: I need all the prayers a I can get!
How scary!  You guys are definitely in my thoughts...
2010-04-12 9:58 PM
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Subject: RE: I need all the prayers a I can get!
Jason,

All my prayers are headed your way to you and your family, and those who are caring for little Ben. 
2010-04-13 4:16 AM
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Subject: RE: I need all the prayers a I can get!
Thank you for your thoughts and prayers. If anybody knows of any great pediatric neurologists let me know. We need a second opinon.
2010-04-13 5:09 AM
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Subject: RE: I need all the prayers a I can get!
I'm so sorry We're thinking of you.


2010-04-13 5:29 AM
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Subject: RE: I need all the prayers a I can get!
All of our thoughts and prayers for the little guy. Please let us know if there is anymore that we can offer as support.
2010-04-13 5:34 AM
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Subject: RE: I need all the prayers a I can get!
Jason, we met briefly at the Assenmacher 100 last summer, and I am quite the lurker around BT not really knowing anyone all that well.  But from one Ben (me) to another my family will be praying for your little man.  Good luck with everything.
2010-04-13 6:55 AM
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Subject: RE: I need all the prayers a I can get!
Sending as much positive energy your way as I can! 
2010-04-13 7:59 AM
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Subject: RE: I need all the prayers a I can get!
I'll be praying for you as well.
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