Life after Brain Aneurysm
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![]() Six days ago, my 30 year old sister suffered a brain aneurysm rupture. She arrived at the hospital in time for surgery success. Her recovery is "remarkable" according to the nursing staff. Her deficits are still unknown, though likely very minimal. She walked out of ICU at her own request! Her vision is blurry, though she can still read for a minute or so without becoming fatigued. Her short term memory is affected, but that could be due to her medication. I am interested in hearing about successful life after an aneurysm experience. PLEASE, NO DEATH EXPERIENCES AT THIS TIME...it's too soon for anything but positive information. I hope you will understand. I want to know especially how family members can best support an aneurysm survivor. I would also want to know what my sister can expect to face in the months ahead. PM or send e-mail to [email protected] . |
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Master ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() | ![]() no experience, but I hope the best for your sister, you and your family in the coming weeks and months for a speedy and complete recovery! Edited by houston-tri-mamma 2004-11-23 8:51 AM |
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Elite ![]() ![]() ![]() ![]() ![]() ![]() ![]() | ![]() I work, and also run and swim, with a guy who had a brain aneurysm several years ago. He just finished his masters in Mechanical Engineering. He works as a research engineer. He is crazy but that he was like that before. Seriously, he does have some aftereffects but he is overcoming them. Up and walking in six days-- sounds like your sister has a great prognosis. I would just advise you and other people who are around your sister to know where her doctor's telephone numbers and her medications and treatment are written down. Get her a medical condition bracelet with the appropriate information. She might have a seizure and not be able to provide information to the EMT's. We will be thinking of your sister. Best wishes. TW |
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![]() TW, Thanks for the advice, it is very helpful and we WILL put it to use. I am glad to hear about your friend being active. Bethany was always active and hopes to return to her skiing, rollerblading, skateboarding, and running. |
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Champion ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() | ![]() OMG, My thoughts are with you and your family... Sounds like you all have alot to be thankful for this Thanksgiving. She must have caught it just in time! I don't have any experience with this type of affliction, but from the sounds of it, your sister appears to be doing well. My fingers are crossed for a SPEEDY recovery. xo LW |
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Master ![]() ![]() ![]() ![]() ![]() ![]() | ![]() Can't give you much in terms of advice, but more than willing to send good vibes {{{good vibes}}} -Frank |
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![]() Thanks Whiz, Bethany is continuing to make progress. She had two sessions of PT yesterday. Lots of walking and other work (Yippee!!). I have to tell you something about the first day following her surgery. In the late part of the morning, I went back to her room and I thought "wow" that's a good sign, she put on lipstick (Bethany nearly always has lipstick on). The nurse walks in next and says, "That popsicle made it look like you have lipstick on!" We all laughed. The thoughts and prayers are very much appreciated and are yielding great rewards, so thank you so much! It was scary, we almost lost her. |
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![]() Oh yeah, luva luva luva the good vibes. Thank you Frank....I am going to bring my copy of Chi Running to my dad when I head back to Idaho tonight. Enjoy Thanksgiving. Michele |
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Champion ![]() ![]() ![]() ![]() ![]() ![]() ![]() | ![]() my friend had a brain aneurysm. Her mom died of the same thing. She got on a plane and went blind and thats how they found it. She had successfull surgery and is fine. She runs marathons and has 2 kids. I think she has a little visual distrubance but other wise is fine. |
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Expert ![]() ![]() ![]() ![]() ![]() | ![]() Michelle, I think walking out of the ICU is remarkable! I don't know how things are going now, but she sounds like a big success story!! I work in neurosurgery and see this problem frequently. Success is certainly possible and it's sounding probable in your case. I wish you all the very best. Remember, be patient, positive and know that the brain heals very slowly.....so don't give up. Just be a supportive sister and she will hopefully continue to bounce back. ![]() Edited by umbach 2004-11-27 10:15 PM |
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Master ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() | ![]() Hi Michele, I am an Occupational Therapist who used to work in brain injury rehabilitation for many years. I treated many clients with brain aneurysms during that time. It sounds like your sister was treated quickly which is a very good thing. She wasn't in a coma for any period of time, and it didn't sound like she went through a prolonged period of confusion...also good. Having a brain injury program keep an eye on her progress might be a good idea...usually the team would consist of a physiatrist (physician with rehab background), psychologist, PT, OT, speech pathologist. Having OT and speech at home would be beneficial...they would be working on the memory and cognitive changes and helping her to cope with daily life activites that may be affected by this. She may not notice cognitive difficuties in routine activities such as housework, but they may appear with more complex activites such as work, finances, driving, school. Fatigue most likely will be difficult to manage for some time...both physical AND cognitive. Hope that helps. PM me if you have any other questions I wish her a successful recovery! Jen |
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Member![]() ![]() | ![]() A few years ago while I was still in college my mother had the same thing. She was in bad shape. She had to go through rehab: to walk, regain motor skills etc. But the amazing thing is she pulled through. Dr's didnt think shed make it. So try not to take it to heart if they give you a dark diagnosis. Today if you met her youd never know she was so ill. Keep hope and she tells me all the time friends and family being there for her helped her immensely. Shes very social and loved when people would call visit etc. I hope this helps some. Hang in there I know how stressful it can be on everyone including family members. |
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Master ![]() ![]() ![]() ![]() ![]() ![]() | ![]() I would second everything Jen said - I am a neuropsychologist and also see a lot of this. Given what you've described, prognosis would be seen as good overall, but being aware of the more intangible factors (like physical and mental fatigue, as Jen mentioned) as well as just a general feeling that people sometimes have of things "just not being quite right" is important. Those issues will pass with time, but sometimes are ignored by treatment providers, and the patient is left feeling like they are somehow abnormal to still not feel quite right even though more tangible things like physical strength are back to normal. Glad to hear she has such great family support from you and others - that is another key to good recovery. Best wishes. Rob |
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![]() Thank you everyone for the valuable information and support! My sister is doing amazing. She is in rehab now and keeping busy with all kinds of therapy: occupational, physical, speech, psychological, etc. She is a survivor and is amazing everyone of us! Thank you, thank you, thank you!!! And a big thank you to everyone here at BT in the medical field. The staff at the hospital and at the rehabilitation center has been great with my sister as well as her friends and family. I know we could never adequately express our gratitude to the medical staff. On behalf of those you come under your care - Thank you. Edited by zagagirl 2004-12-02 5:10 PM |