Other Resources My Cup of Joe » Life after Brain Aneurysm Rss Feed  
Moderators: k9car363, the bear, DerekL, alicefoeller Reply
2004-11-23 12:20 AM

User image

Subject: Life after Brain Aneurysm

Six days ago, my 30 year old sister suffered a brain aneurysm rupture.  She arrived at the hospital in time for surgery success.  Her recovery is "remarkable" according to the nursing staff.   Her deficits are still unknown, though likely very minimal.  She walked out of ICU at her own request!  Her vision is blurry, though she can still read for a minute or so without becoming fatigued.  Her short term memory is affected, but that could be due to her medication.

I am interested in hearing about successful life after an aneurysm experience.  PLEASE, NO DEATH EXPERIENCES AT THIS TIME...it's too soon for anything but positive information.  I hope you will understand.  I want to know especially how family members can best support an aneurysm survivor.  I would also want to know what my sister can expect to face in the months ahead.   PM or send e-mail to [email protected]  . 



2004-11-23 8:50 AM
in reply to: #85755

User image

Master
1914
1000500100100100100
Finally north of the Mason-Dixon Line
Subject: RE: Life after Brain Aneurysm
no experience, but I hope the best for your sister, you and your family in the coming weeks and months for a speedy and complete recovery!

Edited by houston-tri-mamma 2004-11-23 8:51 AM
2004-11-23 10:40 AM
in reply to: #85755

User image

Elite
4344
2000200010010010025
Subject: RE: Life after Brain Aneurysm

I work, and also run and swim, with a guy who had a brain aneurysm several years ago.  He just finished his masters in Mechanical Engineering.  He works as a research engineer.  He is crazy but that he was like that before.  Seriously, he does have some aftereffects but he is overcoming them.

Up and walking in six days-- sounds like your sister has a great prognosis.  I would just advise you and other people who are around your sister to know where her doctor's telephone numbers and her medications and treatment are written down.  Get her a medical condition bracelet with the appropriate information.  She might have a seizure and not be able to provide information to the EMT's. 

We will be thinking of your sister.  Best wishes.

TW

2004-11-23 6:15 PM
in reply to: #85811

User image

Subject: RE: Life after Brain Aneurysm

Thank you, all the support means so much. 

Enjoy your Thanksgiving!

2004-11-23 6:19 PM
in reply to: #85854

User image

Subject: RE: Life after Brain Aneurysm

TW,

Thanks for the advice, it is very helpful and we WILL put it to use.  I am glad to hear about your friend being active.  Bethany was always active and hopes to return to her skiing, rollerblading, skateboarding, and running. 

2004-11-24 11:09 AM
in reply to: #85755

User image

Champion
5495
5000100100100100252525
Whizzzzzlandia
Silver member
Subject: RE: Life after Brain Aneurysm

OMG, My thoughts are with you and your family... Sounds like you all have alot to be thankful for this Thanksgiving. She must have caught it just in time! I don't have any experience with this type of affliction, but from the sounds of it, your sister appears to be doing well. My fingers are crossed for a SPEEDY recovery.

xo LW



2004-11-24 12:30 PM
in reply to: #85755

User image

Master
2233
200010010025
Mechanicsburg, PA
Subject: RE: Life after Brain Aneurysm
Can't give you much in terms of advice, but more than willing to send good vibes {{{good vibes}}}

-Frank
2004-11-24 12:57 PM
in reply to: #86225

User image

Subject: RE: Life after Brain Aneurysm

Thanks Whiz,

Bethany is continuing to make progress.  She had two sessions of PT yesterday.  Lots of walking and other work (Yippee!!).  I have to tell you something about the first day following her surgery.  In the late part of the morning, I went back to her room and I thought "wow" that's a good sign, she put on lipstick (Bethany nearly always has lipstick on).  The nurse walks in next and says, "That popsicle made it look like you have lipstick on!"    We all laughed.

The thoughts and prayers are very much appreciated and are yielding great rewards, so thank you so much!  It was scary, we almost lost her.

2004-11-24 12:59 PM
in reply to: #86267

User image

Subject: RE: Life after Brain Aneurysm

Oh yeah, luva luva luva the good vibes.  Thank you Frank....I am going to bring my copy of Chi Running to my dad when I head back to Idaho tonight.  Enjoy Thanksgiving.  Michele

2004-11-27 2:09 PM
in reply to: #85755

User image

Champion
7704
50002000500100100
Williamston, Michigan
Subject: RE: Life after Brain Aneurysm
my friend had a brain aneurysm. Her mom died of the same thing. She got on a plane and went blind and thats how they found it. She had successfull surgery and is fine. She runs marathons and has 2 kids. I think she has a little visual distrubance but other wise is fine.
2004-11-27 10:14 PM
in reply to: #85755

User image

Expert
644
50010025
Evansville, IN
Subject: RE: Life after Brain Aneurysm
Michelle,

I think walking out of the ICU is remarkable! I don't know how things are going now, but she sounds like a big success story!! I work in neurosurgery and see this problem frequently. Success is certainly possible and it's sounding probable in your case. I wish you all the very best. Remember, be patient, positive and know that the brain heals very slowly.....so don't give up. Just be a supportive sister and she will hopefully continue to bounce back. By the way, did they clip or coil the aneurysm? Just curious if you care to share.

Edited by umbach 2004-11-27 10:15 PM


2004-11-28 9:46 PM
in reply to: #85755

User image

Master
1494
1000100100100100252525
Kingston Ontario
Subject: RE: Life after Brain Aneurysm

Hi Michele,

I am an Occupational Therapist who used to work in brain injury rehabilitation for many years.  I treated many clients with brain aneurysms during that time.  It sounds like your sister was treated quickly which is a very good thing.  She wasn't in a coma for any period of time, and it didn't sound like she went through a prolonged period of confusion...also good.  Having a brain injury program keep an eye on her progress might be a good idea...usually the team would consist of a physiatrist (physician with rehab background), psychologist, PT, OT, speech pathologist.  Having OT and speech at home would be  beneficial...they would be working on the memory and cognitive changes and helping her to cope with daily life activites that may be affected by this.  She may not notice cognitive difficuties in routine activities such as housework, but they may appear with more complex activites such as work, finances, driving, school.  Fatigue most likely will be difficult to manage for some time...both physical AND cognitive. 

Hope that helps.  PM me if you have any other questions

I wish her a successful recovery!

Jen

2004-12-01 4:22 PM
in reply to: #85755

Member
21

Syracuse
Subject: RE: Life after Brain Aneurysm
A few years ago while I was still in college my mother had the same thing. She was in bad shape. She had to go through rehab: to walk, regain motor skills etc. But the amazing thing is she pulled through. Dr's didnt think shed make it. So try not to take it to heart if they give you a dark diagnosis. Today if you met her youd never know she was so ill. Keep hope and she tells me all the time friends and family being there for her helped her immensely. Shes very social and loved when people would call visit etc. I hope this helps some. Hang in there I know how stressful it can be on everyone including family members.
2004-12-02 3:05 PM
in reply to: #85755

User image

Master
1557
10005002525
Maine
Subject: RE: Life after Brain Aneurysm
I would second everything Jen said - I am a neuropsychologist and also see a lot of this. Given what you've described, prognosis would be seen as good overall, but being aware of the more intangible factors (like physical and mental fatigue, as Jen mentioned) as well as just a general feeling that people sometimes have of things "just not being quite right" is important. Those issues will pass with time, but sometimes are ignored by treatment providers, and the patient is left feeling like they are somehow abnormal to still not feel quite right even though more tangible things like physical strength are back to normal.

Glad to hear she has such great family support from you and others - that is another key to good recovery. Best wishes.

Rob
2004-12-02 5:09 PM
in reply to: #85755

User image

Subject: THANK YOU EVERYONE

Thank you everyone for the valuable information and support!  My sister is doing amazing.  She is in rehab now and keeping busy with all kinds of therapy: occupational, physical, speech, psychological, etc.  She is a survivor and is amazing everyone of us!

Thank you, thank you, thank you!!!  And a big thank you to everyone here at BT in the medical field.  The staff at the hospital and at the rehabilitation center has been great with my sister as well as her friends and family.  I know we could never adequately express our gratitude to the medical staff.   On behalf of those you come under your care - Thank you.



Edited by zagagirl 2004-12-02 5:10 PM
New Thread
Other Resources My Cup of Joe » Life after Brain Aneurysm Rss Feed