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2006-01-10 7:27 PM
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Subject: RE: Serious Q: Down syndrome and abortion
To clarify my earlier post, I was refering more to the whole range of genetic disorders, not just downs.  I do realize that some people born with downs are quite capable, moreso than some of the people I know of average intelligence.  I think it's amazing what some of them accomplish.  At the same time, there are genetic disorders and disabilities that result in child that are not so capable, children that will not grow up to be self-suffient and will require constant attention and medical care.  That is a huge committment for a family to make.  For those willing to make that choice, bravo, but I know it's not for me.

As to funding, in the schools where I grew up, children in the special education programs were given individual aids to help them, special classes, and transportation...this is paid for by district funding.  Yes, they should be educated, but shouldn't everyone get proper education at their level?  The gifted program in my district was basically non-existant, instead gifted students were sent off to a corner to read, asked to repeat classes rather than spend money to teach at a higher level.  I think in this day and age, that is wrong.   




2006-01-10 8:07 PM
in reply to: #320704

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Subject: RE: Serious Q: Down syndrome and abortion
I haven't been here for a while, but this thread resonates with me so I feel I need to add my two cents.

I'm not an expert by any means, but any child with Downs Syndrome I've met has been a completely loving child. A true gift. When I was pregnant, I remember reading an article written by a parent with a special needs child who wrote that after the initial surprise, she realized that she was on a different journey than she thought she'd be on. Once she realized that her kid wouldn't be valedictorian, and grieved for the loss of her dream, she accepted her new reality and moved on to love and advocate for her child. She knew she was on a different jpurney.

Like Possum, I'm pro-choice, but I think it would take anencephaly to for me to consider an AB. Just me. After having a daughter, I believe that kids are born 'largely how they are' and we, as parents, can can only have an impact around the child's margins of their personality, if that makes any sense. Just love 'em.

2006-01-10 8:41 PM
in reply to: #320704


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Subject: RE: Serious Q: Down syndrome and abortion
You know, the interesting thing about it is I've never heard anyone say they regret having their special needs child. Is it hard? Sure. Parenting in general is. So is loving anyone.
2006-01-10 9:11 PM
in reply to: #320921

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Subject: RE: Serious Q: Down syndrome and abortion
Writebrained - 2006-01-10 5:44 PM

Obviously many people on this thread are treading lightly. I understand why.

My wife and I have adopted a son with Down Syndrome. He was 8 months old when placed with us. He is now 10 years old. I have two other children (not adopted). To abort a child because he/she doesn't not meet a preconceived standard is just wrong. Period.

There are waiting lists in most states to adopt children with Down Syndrome. We adopted our son from another state. Take some time with special populations and you will not have any debate on this topic. Each person brings a unique personality into this world and the world is missing something (many somethings) because of abortion.

Please don't label me as a right-winger, I'm not. I just have lots and lots of experience with Down Syndrome and (although never offended) find myself somehow offended by this thread.

If you are going to abort because you feel your child with Down Syndrome will not have a good life - don't. You have another option - I will adopt your child. And I promise, he/she will have a quality life and contribute to the quality of life to those around him/her.


Good Lord.......God bless you Writebrained.  As the adoptive father of a "perfect" beautiful now three year old girl I have  to admit I was/am not ready to adopt a special needs child.   Thank you for sharing your story.  It so good to hear the experiences of selfless people.  You are the salt of the earth my friend.   You and your wife deserve all the love your son gives you.

2006-01-11 7:15 AM
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Giver
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Subject: RE: Serious Q: Down syndrome and abortion

I've tried to stay away from this thread, but have thought a lot about it since I first saw it yesterday. I think, really, the only meaningful posts are from those who have directly experienced this situation. I tryly believe that you can postulate and theorize all you want, but until you are in that situation, you don't and can't know exactly how you would handle it. There are way too many variables involved.

When I was 23, my then-girlfirend and I had a pretty memorable coversation. She was drunk and Roman Catholic, so I should have steered clear. But she asked me point blank what I would do if she got pregnant. Without even thinking about it, I said "I don't know." It probably sounded glib, but it was true. I was 23. I was the guy. I didn't know.

I think the same is true here...you don't ever really know until you're faced with the situation.

 

2006-01-11 8:25 AM
in reply to: #320704

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Philadelphia, south of New York and north of DC
Subject: RE: Serious Q: Down syndrome and abortion
We had our fourth child last May. Next month, I turn 48 and my wife turns 45.

We also have a niece with Downs named Kate. She just turned 22. My wife helped her older sister with baby sitting and such when Kate was younger. So, we know the joys and the particular struggles of raising a child with Downs, at least as far as being an aunt and uncle goes.

We've never done any prenatal testing for any of our children, although I know that some Downs advocates suggest testing so that you can be more emotionally ready when your baby is born. If our baby did have Downs and we knew of it, we certainly would have had him.

Persons with Downs have as much a right to life as anyone else.

Thanks for bringing this subject up, auto208562. Selective abortion is a subject that is not talked about enough.

I'm also struck by your self description of being raised in a "'right wing' ultra conservative buddism environment". That's something you don't hear everyday. I'd love to know more about that.



2006-01-11 8:44 AM
in reply to: #321179

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Buttercup
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Subject: RE: Serious Q: Down syndrome and abortion
run4yrlif - 2006-01-11 7:15 AM

I think, really, the only meaningful posts are from those who have directly experienced this situation. I tryly believe that you can postulate and theorize all you want, but until you are in that situation, you don't and can't know exactly how you would handle it. There are way too many variables involved.

Some of us know our hearts and character quite well, Jim. Not all of us equivocate about the big issues in life.

Knowing what the right thing to do is easy. Doing the right thing isn't always easy.

2006-01-11 8:55 AM
in reply to: #321280

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Giver
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Subject: RE: Serious Q: Down syndrome and abortion

That was sort of my point. It is hard to do the "right" thing. Until you're in a situation, you don't *really* know how you'll handle that situation. I think you know how you'd *like* to handle it, but when faced with the moment, well, all bets are off.

ANd what was the right thing in your theorizing, might not be the same right thing when faced with all of the variables specific to that situation at that time and at that place.

 

Renee - 2006-01-11 9:44 AM

Knowing what the right thing to do is easy. Doing the right thing isn't always easy.

2006-01-11 8:56 AM
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Buttercup
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Subject: RE: Serious Q: Down syndrome and abortion

It's not hard for some of us. Doing the wrong thing is very hard for some of us, impossible even.

If you have the courage of your convictions, it's easy. Do you have courage? I do and I have no qualms or hesitation about saying I have courage.



Edited by Renee 2006-01-11 8:58 AM
2006-01-11 9:15 AM
in reply to: #320704

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Subject: RE: Serious Q: Down syndrome and abortion

auto208562:

I said yesterday I was offended by this thread.  Upon reflection, I was wrong.  To not talk about things like Down Syndrome, adoption, etc just enables ignorance.  Your thread has generated some valuable discussion.  Thanks!

2006-01-11 10:43 AM
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Subject: RE: Serious Q: Down syndrome and abortion
I'm RARELY at a loss for words, but this one had me absolutely speachless. But I'll do my best.

I was 32 when Sean was born. Women under 35 aren't sugessted to have an amniocentesis but more women UNDER 35 given birth to children with Downs. More women under 35 have babies. Duh. The common test is AFP [alphafetal protein (sp?)] and more often gives a false positive than false negative, like mine.

I was the one who woke up in the middle of the night to feed Sean, and I would look at him and mourn the dream of having a nobel prize winning brain surgeon who would save the world. What I did get was SO MUCH MORE. He may not be the doctor who finds a miracle cure, but he may inspire the good doctor. He may not be the inventor who creates a great gadget but he may be the one who offers a special hug and encouragement when the inventor feels like giving up. He may be the reason that someone smiles each day.

He touches everyone in his world in such a incredible, wonderful way, I know he was given to us as a true gift. There is absolutely nothing like the feeling of a little hand slipped into yours and his smiling, little face beaming at me as he says "come on" when he wants to show me something.

At the end of the day, your baby is still your baby. All children are a blessing in their own way, regardless of whether they're hooked to a feeding tube, ventalator, heart monitor or your apron strings. I doesn't matter if they know of their own exsitance, I know of their existance and I am a better, more compassionate person for it. Everyone has a reason for being here. The meaning of life and all that. Sean's reason is a bit more clear to me than some other people's, but I won't make fun or criticize anyone for their decision.

Sean may be a stubborn, little kid who needs a little extra patience sometimes when I'm running late, but I wouldn't trade him for any "regular" kid.

I have to go now, because I'm crying at work and people are starting to look at me kinda funny. Just my very humble opinion.


2006-01-11 10:55 AM
in reply to: #321490

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Subject: RE: Serious Q: Down syndrome and abortion
Wow! Anyone feel like going home to hug their children right now. I know I do. Thanks Sheila, that's a wonderful statement about what is really important in life.
2006-01-11 11:09 AM
in reply to: #320704


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Subject: RE: Serious Q: Down syndrome and abortion
I read this thread last night and I've been thinking about it all morning. I work with special needs kids. This morning I played with a little boy who has Downs-Jonnie and another little boy who's autistic-Jack. They function around the same level. (Though, Jonnie has a much sunnier dispositon...) I guess my thought is this: OK, fine, do your prenatal testing. It still doesn't mean you don't have the possibility of having a child with special needs. It doesn't mean your child won't be autistic or having a brain injury or a learning disorder or a wandering eye or need braces. Your kid might even be ugly. These are things that can happen no matter what...does it mean that child is any less loveable? If you honestly think any one of those things could make you not love your child, then you should seriously consider not becoming a parent to any child. (And I'm not saying that to be critical or judgemental, but honestly, your super intelligent, above average child can have a brain injury. What then? Give them up for adoption? Set them free in the woods?)
Good luck to all of you and to all the parents, you guys rock, keep being there to advocate for your kids, special needs or not!~
2006-01-11 11:26 AM
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Subject: RE: Serious Q: Down syndrome and abortion
Set them free in the woods. That's a good one.
2006-01-12 12:00 PM
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Subject: RE: Serious Q: Down syndrome and abortion
Very inspirational posts. I hope one day I can be half as strong, generous, and heartful as some of you.
2006-01-12 12:44 PM
in reply to: #320824

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Subject: RE: Serious Q: Down syndrome and abortion

Having known and worked with many people with all sorts of developmental disabilities and their families who required anywhere from next to none to almost complete assistance, I can tell you that your means of measuring the human worth and quality of life of people you've never met are extremely flawed. You appear to have little real knowledge of these people.

 

dingorock - 2006-01-10 4:41 PM ... there are enough regular kids out there that need to be adopted, why add to the problem? 

If you're talking about infants, there aren't 'enough regular kids out there that need to be adopted.' Not by a long shot. Once they're no longer babies it's next to impossible to get anyone interested in adopting a child. Many adoption agencies, however, report waiting lists of 10-15 families who are looking to adopt an infant with Downs syndrome.  One does not affect the other, or if it does, the effect is minimal at best.

 Why not keep it?  Unlike in previous generations, most of us need to work full time, we have lifestyles that involve traveling around, there are all these cool and exciting things I want my family to do.  They need time and attention, moreso than regular kids.  

In the U.S. for maybe 20 years the ideal of one working parent actually existed. Human history shows most family members working sunup to sundown, including children. Even handicapped ones. 


Maybe a part of me still feels a bit jaded towards them from back in school.  All this money and attention towards them, billions of dollar in education while nationwide less than $10 million is allocated for smart kids.  
The non-special education budget is a tad more than $10 million.
I understand what you're saying though and pitting the needs of disabled children against those of gifted kids can only work against both.

 
It can be a huge life altering decision for the entire family 
And having a healthy baby isn't?
  Seems mean to force them to live.  Or pointless to spends lots of money to maintain life when they're not even aware of it.
You're describing a brain dead person, not one with Down's syndrome.

Our second daughter came to us via adoption. We're fortunate that she has no disabilities, but her gender and health status were unknown to us at the time the decision was made and they were completely irrelevant.

Sheila, Sean sounds like a cool kid.



2006-01-12 5:42 PM
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Crystal Lake, IL
Subject: RE: Serious Q: Down syndrome and abortion

Wow!!!  This thread has blown me away with its sincerity, honesty and sensitivity.  Thanks to all who shared.

I echo Jim's sentiments, but I would explain it slightly differently.  I believe, with every ounce of my being, that only the people involved can decide for themselves.  If you believe you have the right to tell someone else they have to have that child, where will you be in the toughest moments of those parents's lives down the road?  Each person has to find the strength to make that decision for themselves because in the darkest, most difficult times ahead of them they will also have to find the strength within themselves to carry on.  In some ways this is no different than parenting any other child, but I would think that in other ways it is worlds apart.  I don't really know how to explain that last part, but this is what I believe.

I have been through enough situations (our third is due in April) with fertility and tough pregnancies that we have been close enough to start the conversation but never had to finish it.  This is such a volatile subject I commend everyone for treating it with the respect it deserves.

I am curious about something.  The OP states how you were raised, auto208562, but I'm not sure you ever stated where you stand on the issue now?  Do you still feel that way?  And on another note, if anyone is currently in a situation like this and they would like people to communicate with on the web, my wife has some very supportive websites related to fertility and pregnancy issues she frequents.  I'd be happy to pass them along to anyone who pm's me.  They have been very helpful for her/us.

2006-01-12 6:27 PM
in reply to: #322900

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Subject: RE: Serious Q: Down syndrome and abortion

If you are referring to religion, I am not buddhist and the religious beliefs I were taught have become less a part of me as once were.  I do have a tendency to believe in reincarnation that previous lives do affect current or future lives.  I would probably be classified as agnostic (not atheist). 

In regards to the specific issue of down syndrome and abortion, I'm undecided.  One side of me, probably because of my upbringing, agrees with most people that replied to this thread in a positive manner.  Another side of me, what I have learned and exprienced through life, has made me a more practical, logical, and probably a less sensitive person that I have grown to become. 

hangloose - 2006-01-12 3:42 PM

I am curious about something.  The OP states how you were raised, auto208562, but I'm not sure you ever stated where you stand on the issue now?  Do you still feel that way? 

2006-01-12 8:39 PM
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Subject: RE: Serious Q: Down syndrome and abortion
I read through this thread and cried and cried...
Being pregnant again this is an issue very close to my heart.
It is such a personal topic and I have to say that reading through this has helped me even though a lot of it just made me sob. Children are so precious. We must love them. Every minute of every day, with all the challenges that they present along the way, in the end they are sent to teach us as much as we are there to teach them.
Warm hugs to everyone.
M
2006-01-13 9:12 AM
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Subject: RE: Serious Q: Down syndrome and abortion
Well, I said I wasn't gonna post, but the drive I need is down anyway, so here goes. I agree with the vast majority of posters on this thread, but one question has stayed very prominent in my mind. Who are these 92% of people who abort? Generally, when you see that 92% of a random cross-section of society agrees on something, it's pretty middle of the road and obvious. Well, BT is certainly not unrepresentative of society on issues not relating to physical activity. What are we missing? What don't we know that those 92% do? Or are there risk factors or confounding factors that might cause more fetus' with down syndrome in parents who would be less able financially to care for the baby? I think there must be something reasonable to all this. Help me out.
2006-01-13 9:26 AM
in reply to: #323297

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Philadelphia, south of New York and north of DC
Subject: RE: Serious Q: Down syndrome and abortion
kimj81 - Who are these 92% of people who abort? Generally, when you see that 92% of a random cross-section of society agrees on something, it's pretty middle of the road and obvious.


Hi Kim, nice to see you again!

I can't say who the 92% represents, but I've been thinking about something that may relate.

We do not currently have a culture that supports middle and upper class people giving their children up for adoption. When was the last time you heard of someone doing this? Perhaps it happens from time to time, but in general it is looked down upon.

I can imagine that giving your child up for adoption must be one of the most heart wrenching things possible. But if you honestly can't care for a child, it is the right thing to do.

What an act of love it is. First, to protect the life of your unborn child, then to hand over that gift to a family that is in a position to raise that child.

We need to build up a culture that supports this.


Edited by dontracy 2006-01-13 9:28 AM


2006-01-13 11:36 AM
in reply to: #323310

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Subject: RE: Serious Q: Down syndrome and abortion

Don, you're right that our culture needs to be changed to support this kind of thing. Ours was the situation you describe. It was an in-family adoption.

Unfortunately, in my experience, your tendency towards compassion and appreciation for the pregnant woman in this situation is not the norm.

Like other younger girls, ours will play 'mommy' and put a doll under their shirt and pretend to be pregnant. Frequently they'll do this and pretend to be carrying a baby for each other, which is completely normal to them. It's just one of the ways families are created. 

It's astounding to me how many adults try to correct them when they do this and say things like "no that's not right, people don't do that" or "honey that's not the way it works".

2006-01-13 12:51 PM
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Subject: RE: Serious Q: Down syndrome and abortion

I can't tell you where the statistics came from since it was a verbal debate.  I would suspect that 92% is, if not accurate, is very close to accurate.  If you do a search on the web, you will find statistics close to this figure when prenatal screening is used and down syndrome is a possibility. 

I will try to generalize what and where I think that 92% is coming from.  I think our society as a whole has become one that strives for a Hollywood sense of perfection and superficiality.  You see reality shows of people getting plastic surgery and taking drugs like steriods to get the perfect body.  We care more about what people think and do, and less of what our better judgment decides. 

We are also a society that is one that does not like to work.  Just look at our obesity and diabetic rates. We'd rather sit on a couch and watch hours of TV than do any exercise.  We'd rather drive 3 blocks to the local store to pick up a coke (instead of a juice) than drive the very short distance.

These factors, and probably many more I just can't think of right now, I think that as a majority slice of the population, this sense of perfection, superficiality, and 'convenience' factor spills over to how and what people may think.  If you have a child with down syndrome people may laugh, people may snicker, people may think there is something wrong with you for having a baby with down syndrome. It may be considered a burden, something that will ruin people's sense of comfort and enjoyment.   

I think the people that replied to this thread, though seem overwhelming in support of down syndrome and not aborting, I think it is not a fair or accurate statistic.  Though anonymous, there is some identification (especially if you are a paying member) and the 92% will not post negatively on this thread for the fear of getting flamed or disliked.  Only the minority has come out in overwhelming force but I still think that the numbers are greater in favor of abortion if there is prenatal screening of down syndrome.  Unfortunately, that's how our society is. 

2006-01-16 7:02 PM
in reply to: #320704

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Subject: RE: Serious Q: Down syndrome and abortion
I too am impressed with the compassion of folks in this thread.

I recently met a 75 year old woman. She had five children and the youngest was Down Syndrome. 40 years ago no tests were available. After the birth, the Doctor sat with the parents and discussed the options but refused to advise them on their choice. Often children like this were put in institutions. "Jane's" husband told her that since she would be raising this baby that it was her choice. She decided (not easily) she could NOT go home to her 4 children without this little girl that they had all been waiting for. Her husband later told her he had held his breath and hoped she would decide to keep her. Jane told me happy stories about her daughter and how the other kids pitch in and help. She also told me that she had recently written a letter to a woman with a Down's baby about her own experience but hoped that the woman would make her own decision since everyone is different.

My sister in law is pregnant right now and we are waiting some tests. Whatever she has I will be there and whoever we get there will be challenges - Downs Syndrome or not.
2006-01-17 1:32 PM
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Subject: RE: Serious Q: Down syndrome and abortion
Annie, thanks for your input. It's people like you friend Jane who have been brave enough to change a stereotype. 1966. How far we've come in 40 years.

Changing acceptable norms in society is not done overnight. Auto208562, you have every right to your opinion. You also have the right to make decisions about your own family. If you are going to open a very controversial topic, such as abortion or special needs, please have your facts cited. I would definitely like to know where the figure of 92% originated. I'm sure you didn't make the number up. Was it credible? If it's from a study, was it timely and consider a true cross section? What was the prenatal check? They're not all the same.

I don't want to flame or discourage anyone from giving their opinion on this thread. I would like a chance to show you a different perspective.
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