Well that sucks. 1 in a million is not so cool. (Page 3)

spudone - 2013-04-25 2:34 PM

Hang in there.  We are fortunate to have such good diagnostics and specialists nowadays that they can do something about it.

I was chatting with a friend the other day about several different things I've come through that would've been untreatable just a generation or 2 ago.

Hoping for the best in your situation.

powerman - 2013-04-25 4:10 PM

Thank you everybody.

 Ya, I have to have a MRA... a MR angiogram. Doc says it is a huge breakthrough and much much better way of finding these things over how they used to do it. I guess that was pretty dangerous too.

My doc said if he would have opened me up and found it, they would have just closed me back up. One guy is in Phoenix and he has worked with him. Watched him do one and he still does not get how he can do what he does.

However... it took me a bit to get my head wrapped around Door #1, and that is what I am sticking with. That this is just being overly cautious, and we will reschedule and give me time to get over this sucky cold. Ya, have not had a cold in 2 years and my co-worker Typhoid Ryan gave me a doosy. I have not got off the couch the last 3 days. Off to work I go, it should be a fun weekend.

spudone - 2013-04-25 3:34 PM

Hang in there.  We are fortunate to have such good diagnostics and specialists nowadays that they can do something about it.

I was chatting with a friend the other day about several different things I've come through that would've been untreatable just a generation or 2 ago.

Hoping for the best in your situation.

trigal38 - 2013-04-25 7:56 PM

BUT I've been praying for you too. And now you get a giant, heartfelt cyber hug.

powerman - 2013-05-01 2:48 PM

Now I'm really bummed. I have to go to Phoenix. It's an arterial venous malformation. I really really did not want to have to go to Phoenix. Go in a couple weeks. 4-5 days in the hospital before I can go home.

 

On the positive side:

Now there is no chance the tumor I thought I had turns out to be cancer which was a possibility.

The guy in Phoenix is the the guy that wrote the book on these things. So I am going to the best hospital in the world for this.

And... when these things are fixed, they are fixed, done, end of story.... other than the risks involved with surgery... which it is a risky surgery.

 

The surgery is the same though... laminectomy... cut a few vertebrae, dig around in my spinal cord, but now I have the risks of blood clots and strokes. It's been a sucky couple of weeks... but I am going for a run now in the snow. Doc said I can go back to doing what I want I'm not at any particular risk of anything.

powerman - 2013-05-01 3:48 PM

Now I'm really bummed. I have to go to Phoenix. It's an arterial venous malformation. I really really did not want to have to go to Phoenix. Go in a couple weeks. 4-5 days in the hospital before I can go home.

 

On the positive side:

Now there is no chance the tumor I thought I had turns out to be cancer which was a possibility.

The guy in Phoenix is the the guy that wrote the book on these things. So I am going to the best hospital in the world for this.

And... when these things are fixed, they are fixed, done, end of story.... other than the risks involved with surgery... which it is a risky surgery.

 

The surgery is the same though... laminectomy... cut a few vertebrae, dig around in my spinal cord, but now I have the risks of blood clots and strokes. It's been a sucky couple of weeks... but I am going for a run now in the snow. Doc said I can go back to doing what I want I'm not at any particular risk of anything.

powerman - 2013-05-01 3:48 PM

Now I'm really bummed. I have to go to Phoenix. It's an arterial venous malformation. I really really did not want to have to go to Phoenix. Go in a couple weeks. 4-5 days in the hospital before I can go home.

 

On the positive side:

Now there is no chance the tumor I thought I had turns out to be cancer which was a possibility.

The guy in Phoenix is the the guy that wrote the book on these things. So I am going to the best hospital in the world for this.

And... when these things are fixed, they are fixed, done, end of story.... other than the risks involved with surgery... which it is a risky surgery.

 

The surgery is the same though... laminectomy... cut a few vertebrae, dig around in my spinal cord, but now I have the risks of blood clots and strokes. It's been a sucky couple of weeks... but I am going for a run now in the snow. Doc said I can go back to doing what I want I'm not at any particular risk of anything.

Originally posted by powerman

So the saga continues.... Phoenix said it was indeed a tumor that is bleeding. My doc said Phoenix is more able to handle any vascular problems if they occur... so, I'm off to Phoenix Sunday am, surgery Tuesday. Phoenix said at least it looks even more unlikely it is cancerous, but obviously won't know until biopsy. And the bleeding part actually makes it easier to get out. Who knew?

So the kids were right..." it is a toomah" (Arnold voice). I'm just ready to get it over with.... but still not real thrilled with the whole digging around in my spinal cord thing. I'll let you know how it goes.